Hey guys! I have some really good news, and some slightly disappointing news.
I'll get the disappointing news out of the way first: they still haven't finished the paperwork for my trial drug. :-/ Since they are essentially doing a one-person clinical trial just for me, they have to write out a whole protocol and consent and everything, and their people have not yet approved the written proposals yet; they keep sending them back for modification. So, Dr Kang is HOPING next week they'll finally have it ready. It does sound like they have already acquired the drug, so that's a good thing. We just have to get this paperwork out of the way.
Now for the good news- the radiation worked REALLY well!!! The upper lobe of my left lung has been collapsed for months (even after they did the surgery while I was in the hospital, they were only able to get the lower lobe open), is now almost completely re-inflated. The tumor has shrunk dramatically. And the best part is, the radiation doc said that 12 weeks after treatment was sort of the "peak" performance of the treatment, and we're only at about 6 weeks- so the radiation could actually continue to shrink the tumor for 6 more weeks at least! So that is awesome, we weren't sure if the tumor would be very responsive, but it definitely has been. My blood work also looked good.
So now we just have to wait, hopefully not too much longer, to start my new trial drug. As always, please keep those thoughts and prayers coming!! I love you all, and could not do this without your support. <3
